While an expensive treatment for the rare disease Fabrys and MPS-1 is available, commencement of the treatment has become a questionable issue. 150-300 people affected with the dreadful disease are desperate for a treatment. The Canadian Organization for Rare Disorders, Fabry Society of Canada and Canadian MPS Society, are insisting on Government’s initiative to start treatment, a delay of which might cause innumerable deaths in the Canadian society.Supporters of this disease have expressed their helplessness in front of the media.
The federal Health Minister Ujjal Dosanjh and Ontario Health Minister George Smitherman are hurrying up with a contract between the Government and a drug manufacturer, for sharing the risks involved in the clinical testing. I hope that the deal will make the treatment inexpensive for the Ontarian patients, as at the end of the day a treatment costing $350,000 will burden them more than the acute Fabrys pain